I didn’t know if I should write this. It feels really sensitive and it is. But I want to write this so that those who read this will learn more about M.E. I want to write this because I want to learn more.
It is M.E. awareness week.
I remember when I was in school there was a girl in our class who had M.E. She would be off school a lot. I didn’t really understand what it was or what it meant. Everyone just knew that she was really tired all the time. I didn’t know it was something way more than that.
Not until I met and befriended a lovely lady called Tanya who has M.E.
The media isn’t very helpful when it comes to M.E. They seem to only portray it as a psychological problem. There are reports that suggest M.E is all in the mind. It’s like they are saying – You are making this up or You just need to think happy thoughts. You just need to get out of this rut.
It seems like the doctors don’t really know what to do and it doesn’t seem like there is any extensive research going into this.
I find this odd. I wonder if these people who write articles in the newspaper have ever had experience with M.E. Have they ever been friends with someone with M.E? I fear the answer is probably no and they see these people as statistics rather than friends, family or partners. Perhaps as you read this you are inclined to believe those papers without ever actually meeting someone with M.E.
The reason I write this is because when I read Tanya’s blog post about M.E. it reminded me that I have a lot to learn and that what the media says isn’t always reality.
Becoming better friends with Tanya has been great and we enjoy our chats in the afternoon with good coffee. Through this friendship one of things that she has helped me understand is the affects of M.E. And as you read this I wanted to tell you that her M.E. isn’t made up or all in her head. And neither are her friends making up their M.E.
When you get to know someone and you chat and you share worries and dreams and you pray together you begin to see their heart. You begin to see that M.E. is terrible and very real. This isn’t something you would make up – it’s not something you would want to make up or lie about. It is real and it is a thief that robs time and energy away from my friend.
I don’t want to make a case study of Tanya. But I want to show you that it is better to look into, to understand, to meet people and to research and ask questions before believing what the newspapers or the hype says about it.
The truth is I don’t always know what to say. I try to ask as many questions as I can to learn more. I want to learn and understand more. I want to pray and pray for healing too. I don’t know what its like to have M.E. But I want to say I believe you and not in a patronising way, but in a way that says I want to understand more and ask how can I help?
So then, if you feel the same and want to know more, here are some places you can go which may help and has helped me: